Thursday, May 29, 2008

Infected Central Line?

While I was at my routine checkup with my Lyme disease doctor today, she expressed concern that my mediport might be infected. If it is infected, I am at risk for sepsis, or a full body infection. She suspects that it is infected because I have symptoms of an acute infection in addition to night sweats. I know my body and I really think that I just have the bad cold that is going around. Wouldn't I feel terrible if my central line was infected? Wouldn't I have redness or some indication of infection around the site of the mediport? I do trust my doctor so I have to take the precautionary steps in case my line is infected. She prescribed the IV antibiotic Vancomyacin so I am currently at the infusion center watching it drip into my veins. I hope that it doesn't make me feel awful! I have heard that this antibiotic can cause negative reactions also. I am scared that the Vanco will kill more of the Lyme and do it too quickly and I will have a herx reaction. I will keep my fingers crossed that my line is not infected and that the Vanco does not make my symptoms worse.

Monday, May 05, 2008

Hypoglycemia and Insulin Resistance

I suffer from hypoglycemia, or low blood sugar. I should call it severe hypoglycemia because of the extent to which it controls my life. The symptoms of low blood sugar that I experience are shakiness, sweating, headaches, inability to think or concentrate, and fatigue. I first experienced these symptoms when I become ill in 1998. They have progressed over the years into a huge problem. I remember that the summer after I got married, they became noticeably worse. Around the time that my husband and I were moving into our first house, I had to drive with a soda in the car so that I could keep my blood sugar high enough to be able to concentrate on driving. I have always eaten a healthy mixture of fat and protein and I eat every 3 hours. I thought that my diet helped control my hypoglycemia but when we moved into our house in 2006, I could no longer control it by eating protein and fat. I started to rely on glucose tablets to bring my blood sugar back up quickly. Glucose tablets only help for about 20 minutes and then I have to eat something with protein in it. All of a sudden, I found myself eating a small meal every 2 hours. Two and a half years later I am still getting worse. I have been to numerous doctors and none of them have been able to help me control it. I have tried many diabetes medications that were supposed to help but they all made me worse. What is going on?
The reason that I am writing about hypoglycemia today is that I am experiencing a particularly bad day with my blood sugar. I don't know whether to laugh or to cry. I eat so often it is insane. I have gained 20 pounds in the last year. When I was in Hawaii last spring with my girlfriends, one of them asked me if I was pregnant because I was hungry all the time. When I go to a dinner party, I am hungry for another meal before we have even left the party. I can eat dinner at 8pm and be ready for another dinner by 10:30pm. The worst part is that the only thing that I can do to alleviate my symptoms is to eat. My symptoms come on because my blood sugar drops quickly. I can be fine one minute and seven minutes later I am hungry, shaking, and I cannot think. On occasion, my husband has even had to read a menu to me because my blood sugar is so low that I cannot concentrate enough to read. The symptoms make me feel awful and I seek food to make them go away. I have even had doctors tell me to eat red meat every two hours. That just doesn't seem like a good long-term solution to me. Recently, I found out that chronic hypoglycemia leads to insulin resistance, which leads to diabetes! Am I heading toward diabetes? I really don't need another serious chronic illness!! I have been officially diagnosed with Insulin resistance. The strange part is that insulin resistance is usually a result of being overweight. I was thin for years and now the hypoglycemia and insulin resistance has caused me to need to eat more and as a consequence I have gained weight. My nutritionist tells me that if I loose weight, the insulin resistance will get better. How am I supposed to loose weight when I constantly have to eat to bring my blood sugar back up? Do you see how this is an insane vicious cycle? Today I ate breakfast, two hours later I ate a healthy lunch, and an hour and a half after lunch I had all of my hypoglycemic symptoms back and I had to eat again. Now it has been an hour since the post lunch snack and my symptoms are coming back again. What is going on? My doctors think that it has a lot to do with Lyme disease but they don't know exactly what is causing my body to make too much insulin which drives the sugar lower and then causes me to have to eat again. I better say goodbye for now because my hands are starting to shake and it is hard to type. I have to go eat now. . . again!!!!